Fisher Bleu is back!

I am sitting in our living room, and Bleu and Fisher are sound asleep on our bed...yes, we made it back home today!

Last night Bleu went home to sleep...as he felt he was getting a cold after the lack of sleep during the week, and only one of us could stay the night. Fisher got to bed at about 10:3o pm, after an exciting day of seeing again. I was all tucked in the cot ready for watching a couple minutes of SNL as a treat, and ready to then doze for few hours of sleep. That is when a nurse working with our roommate decided to flush the toilet on our side of the room...ugh! Fisher woke up and cried and cried...another reason why every hospital needs single rooms!!!.... I took him on a walk around the halls in a radio flyer wagon that CHOC has for calming kids....it was a moment in time I will never forget. He was so content!

Well, we ended up walking at 11:30pm, 1am and 4am...with only a tiny bit of sleep between. After our 4am ride, he finally got comfortable between my legs with his head on my stomach, and I slept on my back, as if we were ready for a bobsled ride....It was nice to know we could snuggle with less fear of hurting his sensitive body.

Today we hung out in our room, took another wagon ride, and waited for Dr Sundine to let us leave. Yippee! He was so pleased at Fisher's healing.

On the way out it was 2pm and there is an In House radio Station at CHOC called Radio Lollipop, which kids can listen to and request songs. It was donated by Ryan Seacrest and KISS FM I believe, and is such an amazing addition to the hospital. It is in the lobby, so we stopped by and requested "Good Day Sunshine" by the Beatles for Fisher.

Back at the house, Fisher is doing great! He only took his Tylonal with Codeine once today, instead of every 4 hours. He is playing with his toys, getting in trouble, and being the best baby ever!!!! I still am amazed at his transformation. I will miss his old look...I never thought about the fact my baby's appearance would change....but let me tell you, he is very handsome now!!! Watch out, ladies!!!!! This is another reason why photography is so important in our lives, we photographed him so much that it will be great to look back on, years to come.

I will follow with some photos of this last week. They may be shocking, so please be warned. I hope this will help others going through the same path as we took over the last few months.

So, this is the end of our journal, except if there is anything that arises at the follow up appointments in 2 and 3 weeks. I will also add a photo when Fisher has no swelling and no stiches. Hopefully I can contact CAPPSKIDS.ORG and connect this site for part of their support group for others.

Once again, thank you for being a part of our journey! Fisher is a very lucky boy to have you so close to him this week.

Our love, Ali, Bleu & Fisher, too!